Bills / H.R. 4709
H.R. 4709
Newborn Screening Saves Lives Reauthorization Act of 2025
In plain English
Newborn Screening Saves Lives Reauthorization Act of 2025 This bill reauthorizes through FY2030 and revises several programs and activities relating to newborn screening for certain conditions and diseases. Among its changes, the bill reauthorizes and makes mandatory the Hunter Kelly Research Program at the National Institutes of Health, and national surveillance activities conducted by the Centers for Disease Control and Prevention. The bill also provides statutory authority for current regulations that exempt federally funded research on non-identified newborn blood spots (i.e., residual blood samples used to screen for serious conditions) from regulations that govern research on human subjects.
Congressional Research Service summary from Congress.gov (not yet simplified).
Sponsor and status
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How South Carolina voted
No recorded roll-call vote on this bill yet. Most bills never get one.
Who lobbied
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No lobbying reported on this bill in the reports we have loaded (January 2025 through September 2026). Lobbyists report each quarter, about 20 days after it ends, so any lobbying since October 2026 will be added once those reports are filed.