Who it affects
- People with sickle-cell disease enrolled in Medicaid
- State Medicaid programs
- Centers for Medicare & Medicaid Services
In committeeHealth care
Sickle Cell Disease Comprehensive Care Act
S. 721 · Senate bill · Introduced Feb. 25, 2025
The Sickle Cell Disease Comprehensive Care Act would allow state Medicaid programs to offer coordinated care for people with sickle-cell disease.
At a glance
Where it stands
In committee
How South Carolina voted
No recorded votes yet.
See each vote ↓Lobbying and money
No lobbying reported yet
Lobbyists report every three months, about 20 days after each quarter ends. We have January 2025 through September 2026 reports. Newer reports will be added once filed and published.
What it would do
- State Medicaid programs could establish programs called health homes to coordinate care for people with sickle-cell disease.
- States must ensure this care includes dental and vision services.
- The Centers for Medicare & Medicaid Services must issue guidance on best practices for designing and running these programs.
Written with AI from the official summary by Congress's research office.
How South Carolina voted
No recorded roll-call vote on this bill yet.
Groups that lobbied on it and gave to SC's members
PAC, lobbyist campaign and qualifying employee money this election, shown separately and never added together. Lobbying reports name the bills a group worked on, not which side it took.
No lobbying reported yet. Lobbyists report every three months, about 20 days after each quarter ends. We have January 2025 through September 2026 reports. Newer reports will be added once filed and published.
Official record
Official title, sponsor and status
- Official title
- A bill to amend title XIX of the Social Security Act to establish a demonstration project to improve outpatient clinical care for individuals with sickle cell disease.
- Sponsor
- Sen. Booker, Cory A. (D-NJ)
- Introduced
- Feb. 25, 2025
- Cosponsors
- 3
- Committees
- Senate Finance Committee
- Latest action
- Feb. 25, 2025 · Read twice and referred to the Committee on Finance.
Official summary from the Congressional Research Service
Sickle Cell Disease Comprehensive Care Act This bill allows state Medicaid programs to establish health homes to provide coordinated care for individuals with sickle-cell disease. (Under current law, state Medicaid programs may establish health homes to provide coordinated care for individuals with specified chronic conditions.) States must ensure that such care includes dental and vision services. The Centers for Medicare & Medicaid Services must issue best practices for states on how to design and implement such health homes.
Summary on Congress.gov ↗Everyone who lobbied on this bill (0 groups)
No lobbying report we have loaded names this bill. That doesn't mean no lobbying took place.
Lobbyists report every three months, about 20 days after each quarter ends. We have January 2025 through September 2026 reports. Newer reports will be added once filed and published. Reports for October through December 2026 are due January 20, 2027.